Traditionally, research projects would be designed around a specific question that required an answer. If clinical data was needed as part of the study, participants would then be recruited and their relevant information collected. However, recruitment is often difficult, slow and time-consuming.
But what if this process could be changed? Instead of collecting data for each specific project, imagine if it was constantly being collected every time someone visited their doctor. By doing this, large clinical databases can be generated. These are very beneficial for a number of reasons, including:
- Large amounts of clinical data can be stored
Large numbers of individuals can be analysed at once
Data can be recorded across extended periods of time to assess long-term outcomes
These factors are allowing researchers at the Melbourne Brain Centre at Royal Melbourne Hospital to ask and answer many questions that they haven’t been able to previously. Across the coming fortnight, you will hear about our focus into using clinical databases to solve important problems across a range of neurological disorders.
During our databasing feature, we were excited to bring you the following content:
INTRODUCTION TO DATABASING AT THE MELBOURNE BRAIN CENTRE
By Prof Karin Verspoor
In this video, Professor Verspoor introduces us to the use of patient databases at the Melbourne Brain Centre, discussing the challenges faced in regards to their creation, explaining how researchers extract meaning from the data made available, and describing how they can be used to engage patients on their own healthcare.
DATABASING IN EPILEPSY RESEARCH - COMING SOON
By Dr Anne McIntosh
In this video, Dr McIntosh introduces us to NeuroBase, and explains how the Melbourne Brain Centre collaborates with clinicians to capture live data from patients, that she then uses to help progress research into long-term outcomes of epilepsy.
DATABASING IN MULTIPLE SCLEROSIS RESEARCH
By Dr Vilija Jokubaitis
In this video, Dr Jokubaitis introduces us to the research she is undertaking using MSBase, a Neuro-Immunology Registry used by multiple sclerosis researchers around the world. Specifically, she is investigating the clinical predictors that can be used to determine an individual's outcomes of multiple sclerosis.
INTRODUCING THE CLINICAL OUTCOMES RESEARCH UNIT (CORe)
By A/Prof Tomas Kalincik
In this video, A/Prof Kalincik introduces us to the Clinical Outcomes Research Unit (CORe), a newly established team that he is leading to undertake cross-functional investigations using observational data sets.